Tuesday, April 29, 2014

Autism Awareness Giveaway, Week 4!!

I can't believe it's the end of the month. Thanks for everyone who stopped by to read life from our perspective. I hope you went away feeling enlightened and uplifted.


There are so many things to read on autism. So many positions one can take on the topic : opinions, facts, what's real, what's true, what's not.

 Where do you stand?

I am not here to tell you where to stand, or sway you one way or another. I am just here to share bits and pieces of our story in hopes to spread awareness; awareness that everyone is different, and we all need to be loved and valued.

So it is my hope, that maybe, if you are the anxious mother who is up doing google searches on autism at odd hours of the night, or maybe you're on the spectrum and you're just feeling a little alone right now, or you're the dad who wants to connect with his son or daughter, or the sibling of someone on the spectrum- maybe, you will find this blog. And you will read. And you will be comforted, uplifted, and inspired.

That is my hope.

 That completely away from Autism Society of America, Autism Speaks, TACA, and any other organization or research study, or whatever; maybe you just need to read- to laugh, cry, and connect with simple experiences from a simple family. Maybe you just need to feel emotions. And maybe that is just what you needed tonight. Maybe you just need to know you are not alone. Because no matter how much support there is, no matter how much information there is out there, the road is still lonely at times. And you are not alone!

That is my hope.

And so this week's giveaway is a little different. I was reading Stellaluna with Lane this week and came to this page:

They perched in silence for a long time.
"How can we be so different and feel so much alike?" mused Flitter.
"And how can we feel so different and be so much alike?" wondered Pip.
"I think this is quite a mystery," Flap chirped.
"I agree," said Stellaluna. "But we're friends. And that's a fact."

I have read this wonderful story many times. And every time I get to this page, I have to pause and think about the wisdom of these little birds and bat. And I am thankful to the author, Janell Cannon, for giving the world the story of Stellaluna, and it's beautiful message.

So this week's giveaway is:
Stellaluna
by: Janell Cannon


*You do NOT have to be a follower to enter.  
*I will have one copy of a different book every week, so be sure to check back weekly.
 *One winner will be announced every Friday, and a new book drawing up on Mondays.
*To be entered in the drawings, please leave your name and a way to contact you in the comment area of this post.  Also, we are all effected by autism in one way or another: tell us about it in your comment if you like


Thanks for stopping by.

Monday, April 28, 2014

And the Winner is...

Using random.org,

the lucky winner for Mockingbird is:

Janet

I'll be contacting you shortly by email.

Thanks to all who left comments. Please hop back to Team-Armstrong any time to read about the world from our perspective...  

Happy Autism Awareness Month!!

Wednesday, April 23, 2014

Autism Awareness Giveaway, Week 3!!

I am sorry, readers, for not getting this out yesterday (I like to address you as if there are hundreds of you... even thousands of you who stop by my blog daily. And I am this well known writer, full of wisdom, whose words you come to seek... it's a nice dream).

I hope you all had a wonderful Easter weekend.

----

We all grieve differently. Each and every one of us. Based on life experiences, beliefs, and our personal uniqueness, we all express our sorrows in different ways. Individuals who are on the spectrum, and who are not: we are all different.

This week's giveaway holds a special place in my heart; it has since the first time I read it.  And even more so in the last few months than in years past does it hold special significance for me. This week's giveaway is:

Mockingbird
by: Kathryn Erskine


This story is written from the perspective of a young girl with aspergers who just lost her brother in a tragedy. It has an important message of grieving. I always thought the message was valuable. Then recently we lost someone who was very dear to our family... And now, the book means even more.

The boys' tae kwon do teacher, Mr. Chad, tragically passed away this February. It is the first time the boys have experienced loss in this way. Yes they have known elderly family members and elderly members of our church who have passed on. But this was the first time someone young, someone we saw often, someone who the boys considered their friend had died.

The Internet is filled with helpful information, as well as not so helpful on the grieving process for individuals on the spectrum. The one I found most helpful, was The Thinking Person's Guide to Autism.  I am a visual learner and the charts and graphs in this article broke things down very nicely for me.

When Race is having anxiety, he doesn't want to do anything. He is unmotivated- and needs a lot of push to get through the emotions. He shuts down. Something inside him hits the OFF switch. And we have discovered that, in many circumstances, Race hasn't yet learned how to get through the anxiety completely on his own. He needs a lot of emotional support.

After the immediate shock of the sad news, after the tears and hugs and counseling as a family, after family prayer and happy stories of Mr. Chad, Race didn't want to go to tae kwon do. Race, the boy that found friends at tae kwon do, the boy whose big dream was becoming a black belt- the state champion. He didn't want to go to tae kwon do. All the talking about feelings didn't matter... he still didn't know what to do about the emotions, the sadness, and the anxiety he was feeling.

"I am just so sad. And I don't know what to do because I am just so sad. I don't know what to do with the sad."

"Mr. Chad would want you to go to tae kwon do."

"I can't. I can't. I can't."

"Let's just try. I think it will help you know what to do with the sad."

And finally, after having this conversation over and over, he agreed to go.

We kicked and punched bags all morning. And Race was reluctant at first. Master Conover challenged him to hit harder, kick harder and he started to. And then after minutes of pushing his body to the max, he felt a sense of release. I could see it on his face as the tears came, "It feels good," he said as he kept on kicking that bag. And the next week, and the week after, Race, Witt, and I would run up and down the street. Hard. It was the hardest I have ever seen Race run. And while at OT, his therapist said he  just wanted to do sensory work the entire morning.

Race found what to do with the sad. And I didn't realize it then, but looking back on it now, a few months later, it was as if the sad was an actual, tangible thing. And he literally needed to find a way to manipulate it, get control of it, instead of it being in control of him. And heavy duty sensory work was how he did it.

He still goes through waves of sadness. We all do. And I think we always will. But I look at my boys and their faith never ceases to amaze me. They know Mr. Chad lives on. And they honor him by striving to be leaders. By standing for the right, and desiring fairness and honesty from those around them. Just like Chad did.


The process of grieving changes people. There is something about the depth of emotions we feel when grieving that changes us.

I am grateful for all the information that is available to support the grieving process. For good books that are out there to help bring awareness and find a way to uplift us in the midst of such intense emotions.  For hope and faith. And for the knowledge that Mr. Chad still lives and we will get to see him again some day.



*You do NOT have to be a follower to enter.  
*I will have one copy of a different book every week, so be sure to check back weekly.
 *One winner will be announced every Friday, and a new book drawing up on Mondays.
*To be entered in the drawings, please leave your name and a way to contact you in the comment area of this post.  Also, we are all effected by autism in one way or another: tell us about it in your comment if you like

Sunday, April 20, 2014

And the Winner of Week 2 is...


Using random.org,

the lucky winner for The Reason I Jump is:

Calena

I'll be contacting you shortly by email.

Thanks to all who left comments. Please hop back to team-armstrong any time to read about the world from our perspective...  

Happy Autism Awareness Month!!

Tuesday, April 15, 2014

Autism Awareness Giveaway Week 2!!

There is a lunar eclipse happening right now. And I'm sad because I want to wake the boys up to show them... but tomorrow is a big day. So I won't be waking them up. It's testing day. Tomorrow, Race has his first of three days of AIMS testing. Yay for us! I won't bore you with my opinions of state testing and accommodations and IEPs because this month, it's about inspiring... If you would like to ask me questions about any of these things, please ask. I am full of opinions and resources. :)

 But I will say this-- Going to an online school has been a very positive experience for Race. IEP meetings have been pretty good, and Race gets so much support in speech, occupational therapy, and writing through great therapists and amazing technology like web cams and chat rooms. I am in awe at how far technology has come, and I am so grateful that we are able to use it so effectively, in a way he responds so well to.

 Not only am I grateful for the extra support in areas that he struggles but also the opportunities that tap into Races gifted areas as well.  Race gets to be in a Current Events Live Class where he gets to talk about some of his favorite stuff... facts and information! He is also taking a Julliard Music Class, where he gets to learn about music history, theory, and even gets to compose his own stuff. He loves it so much. I am so grateful he is passionate about music. Here's his latest Language Arts Assignment:


Every week Race has a big writing assignment that takes up a huge chunk of his learning time. It isn't that the assignments are difficult; it is just that Race struggles organizing his thoughts in a way that make sense to others. He hates the tricks of the English language-- the writing rules that always have exceptions, and the grammar rules that always have exceptions. We spend a lot of time brainstorming and using fun writing games and graphic organizers that help him see the picture better. To help him see the journey that each different piece of writing needs to take from beginning to end.

His mind amazes me, and along with that, the complexities of the human brain amaze me- how one kid who can show you where any country, state, capital, or geographical location is on a map, how a kid who can sit down at the piano and play a song he recently heard and how that SAME kid with that gifted memory can struggle so much in expressing thoughts and ideas both verbally and written is amazing. And in reality, we all have things we are good at, as well as things we struggle with. But with Race, and with many individuals on the spectrum, the gap is wider and more extreme. Very interesting. And tonight it has me thinking how we are all a little like the moon. How sometimes we give the world much to look at and we are easy to understand. We shine, and share our light with others. And other days, we are hiding. We don't give off our full light. And dare I say how autism is like the phases of the moon also. Race's mind is so often a mystery to me, and even though on some days, he only gives me bits and pieces at a time to see and understand, I know the whole moon is there.

And that is why I so love the book I am giving away this week. And because of it, I gained a better understanding of the amazing mind of one young man with autism. And I hope you enjoy and learn as much from it as I did. It is a beautiful, quick read:

The Reason I Jump
by: Naoki Higashida


*You do NOT have to be a follower to enter.  
*I will have one copy of a different book every week, so be sure to check back weekly.
 *One winner will be announced every Friday, and a new book drawing up on Mondays.
*To be entered in the drawings, please leave your name and a way to contact you in the comment area of this post.  Also, we are all effected by autism in one way or another: tell us about it in your comment if you like.

He loves springtime in the Verde because "the cottonwoods make snow."

Once again, thanks for stopping by and for helping to spread awareness!

Sunday, April 13, 2014

And the Winner is...


Using random.org,

the lucky winner for Autism and the God Connection is:

Julie

I'll be contacting you shortly by email.

Thanks to all who left comments. Please hop back to Team-Armstrong any time to read about the world from our perspective...  

Happy Autism Awareness Month!!

Friday, April 4, 2014

April is Autism Awareness Month! Sign up for the First Giveaway!

Well, if you stop by every now and again, you know April is a big month at our house. Time to spread the awareness:

New Research is showing now 1 in 68 US kids is diagnosed with ASD (Autism Spectrum Disorder) in the US.  It effects all of us and awareness is so very important. Talk to your kids about autism.  As a parent of a child with autism, one of the big struggles we deal with is social interaction.  Again, please talk to your kids about autism, we need more awareness and understanding from the younger generation, from the peers of these amazing kids. 



I can see it in my mind like it was yesterday, all the time I spent with my grandparents. We grandkids always knew when Papa was coming or going cuz we would hear the garage door open. Out to the yard I would run; into the swealtering heat of Mesa Arizona, and hop up on the block fence that met up just by the garage.
"Where you going, Papa?" I would ask. Or, "Where've you been, Papa?" if he was just returning.
"Oh, out for a circle" was always his answer.

Being in the autism world now for six years, I can pretty much say I have walked a full circle on how I view the autism "epidemic". Where now I cringe when I see a book that uses words like, "curing", "preventing" or "healing" autism in their title, I now open books like, Autism with Honor, and  The Spark, and Autism and the God Connection.  Books that inspire me... not make me feel the guilt of giving my son autism.

I still get e-mails from people with links to articles I should read, books that would help Race and I, new studies I should read about to cure him, new teaching strategies I should use with him, new therapy programs... the list goes on. And six years ago, I would have tried it all. And three years, I would have probably cried at how I'm not doing a good enough job because look, other people think I am failing. And now... I take what I want from it. Toss alot of it, give my feedback on some, and the stuff that truly applies to me, sure I'll use.

A circle.

Six years ago, I was asking why. I was angry and scared (I still do this on bad days. And in stressful social situations, it is amazing how quick I fall back into this anxious state). Three years ago I would have been taking lorazapan my doctor perscribed me so I could sleep through the anxiety. Today, I know that despite what any of the research says, what any of the preventativs are, that Race is Race. And Heavenly Father gave him, me, and our family this trial. And he is one of my greatest teachers. He is good and kind naturally. He carries a piece of Heaven with him everywhere he goes. I feel so lucky to be his mom. And you know what else? Today more than ever, I know that Heavenly Father has been preparing me, my whole life to be a mother of such an amazing kiddo, and an advocate for others.

A circle.
  • When I was in high school, I coached Special Olympics. 
  • My elective was to help out in the special ed room and all the students who visited there were my friends. I looked out for them.
  • I took many special ed, and iep writing classes in college until I changed my emphasis to writing.
A circle.

Mariah was a girl in the class I student taught in. She has autism. She was not in the regular class with us very much. She spent alot of her time in the special education room, but would come to class with us for story time, electives, field trips, etc. Mariah was such a fun girl. I loved her, and she loved me. And just like always, just like when I was a kid, or a teenager: I looked after her.

Well, at the time I was student teaching, I was pregnant with Race. It was early, and with him being my first, I didn't show for a while. None of the students knew I was pregnant. None of the staff knew I was pregnant except Sara, the teacher I student taught under (who is still a big part of my life). She was the only one who knew. So, you can imagine the surprise when one morning, when I was dismissing for recess and Mariah came to give me one of her hugs and she paused. I didn't think much of it, but she hugged me again and looked up at me with a big grin.
"You have a baby in there." It was a statement. Not a question.
"What, Mariah?"
"You have a baby in your tummy."
I looked around, not wanting any of the other kids to hear her. And they hadn't. They were out on the playground by now. I knelt down so I was eye level with Mariah. And I can still see those innocent, knowing eyes. Those eyes that saw the world through an amazing, gifted, angelic mind. "Mariah. Shhhh. You can't tell. Not yet."
She giggled in agreement before bounding off to the playground.

I think about Mariah alot. I wonder what happened to her. She would have graduated last year. But some days when I see Race do things that don't make any sense to the world, or when I see Race forgive kids easily who have been unkind, or when he is so quick to appologize when he has wronged someone, or the fact that he just doesn't know how to lie. Or when he is being the peace-maker in our home. I think of Mariah. And I want to tell her, "Mariah, guess what? You know that baby that was in my tummy? He kind of sees the world the way you do..."

A circle.


And once again, I will be hosting my own Autism Awareness Giveaway where every week during the month of April, some of my favorite books will be given away. 

And the book this week is:

Autism and the God Connection
by: William Stillman

 

*You do NOT have to be a follower to enter.  
*I will have one copy of a different book every week, so be sure to check back weekly.
 *One winner will be announced every Friday, and a new book drawing up on Mondays.
*To be entered in the drawings, please leave your name and a way to contact you in the comment area of this post.  Also, we are all effected by autism in one way or another: tell us about it in your comment if you like.

Thanks for stopping by, and remember to spread the awareness!